Search Results
News Release
NIH submits new policy that requires all NIH-funded investigators who conduct sensitive, health-related research be issued Certificates of Confidentiality.
… 13, 2016, was to strengthen privacy protections law for research participants. The new law specifically requires additional protections for sensitive information that is collected from participants …
News Release
The zebrafish is a powerhouse tool that helps researchers better understand the genes that are implicated in disease.
… But this wee creature is making big waves in the sea of genomics research. The zebrafish is a powerhouse tool that helps … want knocked out," said Dr. Sood. "It's a service provided for NHGRI investigators." Usually the genes are selected …
Event
The NHGRI Center for Precision Health Research sponsors a monthly series of talks by intramural and special guest speakers on research relevant to the use of genomic data and large-scale electronic health record information to improve health.
… … Request an Accommodation … The NHGRI Center for Precision Health Research (CPHR) sponsors a monthly series of talks by … details are updated as information becomes available. For more information, please contact Les Biesecker at email …
FAQ
Frequently asked questions from the May 23, 2023 informational webinar, ELSI Research and the New NIH Data Management and Sharing (DMS) Policy.
… the NIH-wide list of FAQs, and the optional template for DMS plan submission. In addition, NHGRI has released some … from Human Participants Does the DMS Policy expect that informed consent obtained from research participants must allow for …
Research at NHGRI
The Social and Behavioral Research Branch conducts research to apply genomic discoveries to improve health and clinical care.
… The Social and Behavioral Research Branch (SBRB) aims to develop optimal approaches for the integration of genomic discoveries into clinical and … families. We conduct research at the intersection of genomics and the social and behavioral sciences and train the …
The Genomics Landscape
In the June 2018 issue of The Genomics Landscape, NHGRI Director Eric Green highlights the success of The Cancer Genome Atlas.
… their origins at Washington University, and I am grateful for my extensive ties to this outstanding institution. As the … are available on the ' Establishing a 2020 Vision for Genomics ' website. NHGRI will host a Town Hall at the … where, and why tumors arise in humans, enabling better informed clinical trials and future treatments. As the …
Research Funding
Fosters basic and applied research on the ethical, legal and social implications of genetic and genomic research. ​
… information May 17, 2016  Events Pre-Application Webinar for the Building Partnerships and Broadening Perspectives to … for Genetic Research  (09/00) NCHGR/CDC Workshop on Informed Consent for Genetics Research Using Stored Tissue Samples …
Fact Sheet
Genomic data science is a field of study that enables researchers to use powerful computational and statistical methods to decode the functional information hidden in DNA sequences.
… genomic data science will be a vibrant field of research for many years to come.  Performing genomic data science … with complex issues related to privacy and identity.  Informed Consent: Researchers usually ask for consent from …
Event
On December 11, 2023, NHGRI, in collaboration with several other NIH Institutes and Offices, recently renewed the three Notices of Funding Opportunity (NOFOs) used to support investigator-initiated research on the ethical, legal and social implications (ELSI) of human genome research.
… made available. … Questions … The National Human Genome Research Institute, in collaboration with several other NIH … Opportunity (NOFOs) used to support investigator-initiated research on the ethical, legal and social implications (ELSI) of human genome research. Program officers from the NHGRI ELSI Program hosted …
News Release
NIH expands its Encyclopedia of DNA Elements Project, which is creating a fundamental genomics resource scientists to study human health and disease.
… (ENCODE) Project, which is generating a fundamental genomics resource used by many scientists to study human … a network of researchers to develop and apply methods for mapping candidate functional elements in the genome, and … synthesizes the data into an encyclopedia for use by the research community. Pending the availability of funds, NHGRI …