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The Genomics Landscape
In the October 2021 issue of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., introduces us to new scientific director Charles Rotimi, Ph.D., his background and prior accomplishments.
… to bring to your attention a spectacular recent feature in Science that describes the remarkable work of NHGRI’s … for a Just and Equitable Future.” Justice and equity issues are embedded in the complex questions about utility, … two fellowships each year. The Genetics and Public Policy Fellowship provides fellows an opportunity to work in …
Policy Issues
This glossary contains definitions for commonly used terms (such as "bill", "statute", "regulation" and more) found in the Genome Statue and Legislative Database.
… (such as "bill", "statute", "regulation" and more) found in the Genome Statue and Legislative Database. … Bill: The … or amend rules that apply to both houses; to deal with issues or matters affecting both houses, such as a concurrent … found in the Genome Statue and Legislative Database. … Policy Issues …
News Release
The National Institutes of Health (NIH) Genomic Data Sharing Policy includes expectations for how researchers should obtain, share and access genomic data from human and non-human sources. As a leader in genomics, including relevant policy development and implementation, the National Human Genome Research Institute (NHGRI) encourages data sharing practices that go beyond the NIH expectations.
… National Institutes of Health (NIH) Genomic Data Sharing Policy includes expectations for how researchers should … genomic data from human and non-human sources. As a leader in genomics, including relevant policy development and …
Policy Issues
NHGRI has created the IDE Greenhouse as an educational resource to help increase understanding of the regulation in the genomics context.
… sequencing (NGS) and other genomic tests to be in vitro diagnostic devices (IVDs), a type of medical device. … to help understand the regulation in the context of genomics. Genomic studies that were either successfully … understanding of the regulation in the genomics context. … Policy Issues …
The Genomics Landscape
In the September 3, 2020 edition of The Genomics Landscape, Dr. Eric Green talks about the Impact of Genomic Variation on Function (IGVF) Consortium, the 2020 Genomic Innovator Awards and more.
… from home. If you are seeking some virtual connections to genomics, I would like to offer some “remote learning” … 30th anniversary of the launch of the Human Genome Project in October 2020. Check out the latest oral histories by … and she continues to play a key role in data sharing policy development and implementation as co-chair of NHGRI’s …
The Genomics Landscape
In the June 2021 issue of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D. details the upcoming appointment of acting NHGRI Deputy Director, Vence Bonham Jr., J.D. and what it means for the institute.
… is the 5th session of the “ Bold predictions for human genomics by 2030 ” seminar series, which takes place on … include webinars and Twitter chats (see additional details in the story below). All the best, … Embrace the … Vence is familiar with NHGRI’s long-standing leadership on issues related to diversity in genomics. Most recently, he …
The Genomics Landscape
In the July 2021 issue of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., reflects on the legacy the LINCS program leaves as it has completed its goal of creating a large-scale, systematically generated molecular and cellular dataset.
… telework over the last 17 months will undoubtedly result in some changes to how NIH staff members function, as (like … for our work and lives. Also, in last month’s The Genomics Landscape , I reported my intention to appoint Vence … synthesis; adaptation in modern biology and genetics; issues of race and genetic exceptionalism; the status of the …
Policy Issues
The 9 steps a bill can go through before becoming a law, using the Genetic Information Non-Discrimination Act of 2003 as an example.
… Nondiscrimination Act (GINA), a law that was passed in 2008 and impacts the field of genomics, provides an excellent example of the legislative … Non-Discrimination Act of 2003 as an example. … Policy Issues …
The Genomics Landscape
In the June 2020 edition of The Genomics Landscape, NHGRI Director Eric Green details NHGRI's new Diversity in Genomics Workforce Initiative.
… difficult time, with the events of the last week in cities across the United States on top of the illness, … and inclusion a priority. As I have mentioned in previous issues of The Genomics Landscape , several government … Library of Medicine (NLM) is proposing a change in policy related to its Sequence Read Archive (SRA). The SRA …
Policy Issues
Federally-funded research with human participants must comply with regulations that protect the rights and welfare of the participants.
… The use of human participants in biomedical, clinical and social-behavioral research can … funded by or carried out at NIH, is subject to the Federal Policy for the Protection of Human Research Subjects, or … genomes as part of a research study raises a number of issues that the informed consent process needs to address, …