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National Advisory Council for Human Genome Research
The Director's Report-Related Documents contain links to materials supplemental to Dr. Eric Green's Director's Report presentation to the National Advisory Council for Human Genome Research in May 2024.
… MB] No. Relevant Documents 1 ASHG-NHGRI 2024 Genomics and Public Service Fellows 2 New Director, Fogarty … Health Research 7 FDA Finalizes Rule for LDT Oversight and Regulation FDA Finalized Rule Final Regulatory Impact … of Richard Cooper 11 FDA Finalizes Rule for LDT Oversight and Regulation FDA Finalized Rule Final Regulatory Impact …
The Informed Consent Resource
Explore genomics-relevant considerations for informed consent and guidance on how to approach them.
… genomics-relevant considerations for informed consent and provides guidance on how to approach them. It also … important content to include in their consent forms and how to use clear and concise language to inform … name, we will give them basic information such as your race, ethnic group, geographic region, age range, and sex …
Staff
Christopher R. Donohue is historian at the National Human Genome Research Institute (NHGRI) and co-manages the NHGRI History of Genomics Program.
… the historical digital genomic holdings at the NHGRI and co-manages the History of Genomics Program. The History of Genomics Program is a unique history and science communications effort at the NIH that uses the … Shmidt for Patterns of Prejudice on “‘Slavdom,’ genes and “race science”: between nation-building and the global racial …
File
… Accessing the Archive: Disability, Race, and the History of Eugenic Institutionalization …
File
… Who is Unfit?: Centering Race and Disability in Histories of Eugenics …
The Genomics Landscape
In the September 2023 edition of The Genomics Landscape, NHGRI Director Eric Green, recaps the April 2023 virtual reunion of the leaders of the five genome-sequencing centers (G5), where they tell the untold story on how they ushered the Human Genome Project across the finish line in 2003.
… Genome Research (NACHGR) will take place on September 18 and 19, 2023. Three times a year, NHGRI convenes NACHGR, a … starting at 10:30 a.m. ET to hear updates about NHGRI and genomics. The American Society of Human Genetics (ASHG) … 2023 Annual ASHG Meeting. Mona joined ASHG in July 2017 and has led it through a period of substantial strategic …
Staff
Eric D. Green, M.D., Ph.D., served as the director of the National Human Genome Research Institute (NHGRI) at the U.S. National Institutes of Health (NIH) from 2009 to 2025.
… chief of the NHGRI Genome Technology Branch (1996 - 2009) and founding director of the NIH Intramural Sequencing Center … ] Bonham VL, Green ED, and Pérez-Stable EJ: Examining how race, ethnicity, and ancestry data are used in biomedical research. …
News Release
Researchers with support from NIH will conduct research into the genetic underpinnings of Alzheimer's disease.
… NIH awarded grants for using innovative new technologies and computational methods for the analysis. The scientists … Washington, Seattle; Washington University in St. Louis, and University of Texas, Houston. The investigators will … in 2012 between the National Institute on Aging (NIA) and the National Human Genome Research Institute (NHGRI), …
Research Funding
A list of current and previous Centers of Excellence in Genomic Science (CEGS) grant awards.
… to an individual's traits, including their disease risks and likely responses to drugs or other environmental perturbations. However, genome sequencing and clinical genetic testing have far outpaced our ability to … who carry ancestry from outside their self-identified race. The All of Us (AoU) Program and the Million Veterans …
Profile
In an interview, Boyer reflects on her NHGRI career, the history of the NHGRI ELSI Research Program and the exciting future of research at the interface of ethics and genomics.
… From pastor to program director in the Division of Genomics and Society, Joy Boyer concludes her distinguished career at … When people look at it, they see their greatest fears and their greatest desires. There's always been this tension … an incompetent plumber squeezing the pipeline of genomics and inhibiting good, life-saving research from moving …