Search Results
Administrative
NHGRI branch responsible for policy development and analysis related to advances in genomics research.
… The Policy and Program Analysis Branch (PPAB) of the Division of Genomics and Society conducts policy development and … PPAB promotes policies that facilitate the uptake of genomic technologies into the clinic and broader society, …
Policies and Guidance
For FY22, NHGRI’s extramural program will be operating under the NHGRI 2020 Strategic Vision.
… Vision for Improving Human Health at the Forefront of Genomics” in Nature . The development of this vision involved participation by many scientists in … and expanding the diversity of the genomics workforce; and ethical, legal, and social issues related to genomic …
Educational Resources
The Human Genome Project was an international project that mapped and sequenced the entire human genome.
… well as its groundbreaking approach for the free release of genomic data well ahead of publication, leading to a new ethos for data sharing in …
Policy Issues
NHGRI wants to ensure that all populations benefit from the advances of genomics research.
… Genomics research is shaping the future of medicine. For these advances of this research to benefit everyone more equally and improve … of the population. It is also necessary to understand ethical, legal and social issues including utilization of …
Fact Sheet
Genomic data science is a field of study that enables researchers to use powerful computational and statistical methods to decode the functional information hidden in DNA sequences.
… The Big Picture Genomic data science is a field of study that enables researchers to use powerful … genomics research will generate between 2 and 40 exabytes of data within the next decade. Our ability to sequence DNA … Performing genomic data science carries with it a set of ethical responsibilities, as each person's sequence data are …
Policy Issues
Revisions to the Common Rule modernize, simplify, and enhance oversight for human subjects research in the United States.
… The final version of the Common Rule was published in the Federal Register on … the U.S. given that local IRBs will have more insight into ethical issues that require consideration (.114). Enforced … clinical trials are subject to the Common Rule. Standards and Tools The NPRM proposed a number of additional …
About Genomics
Appropriate use of population descriptors in scientific research is critical for the advancement of genomic science and human health for all.
… In response to a request from the National Institutes of Health, the National Academies assembled an interdisciplinary committee of expert volunteers to conduct a study to review and assess existing methodologies, …
The Genomics Landscape
In the December 2018 edition of The Genomics Landscape, NHGRI Director Eric Green recaps progress from NHGRI strategic planning process events in 2018.
… Eric Green, M.D., Ph.D. … As signaled by the rapid arrival of cold weather and the seemingly overnight arrival of holiday-themed daily life, the year 2018 is rapidly coming … to gather input from focused groups, such as experts in ethical, legal, and social implications (ELSI) research. In …
Funding Opportunities
Funding for New and Early-Stage Investigators
… One essential element of the NHGRI mission is supporting researchers through their … to make the next scientific breakthroughs in the field of genomics. NHGRI welcomes applications from new and … sciences; genomic medicine; genomic data science; and ethical, legal and social implications of genomics. Next …
FAQ
Questions and answers to help applicants responding to the Pre-Application Webinar for the Building Partnerships and Broadening Perspectives to Advance ELSI Research (BBAER) Program RFA-HG-24-026.
… amount across all proposed subawards cannot exceed 40% of total direct costs. Can organizations outside of the United States (foreign organizations) apply to this … and one set of written critiques. … The NHGRI’s Ethical, Legal and Social Implications (ELSI) Research …