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Policy Issues
Scientific institutions are developing recommendations to support the responsible use of human gene-editing research.
… In the United States and around the world, scientific institutions are developing … research. This initiative examined the clinical, ethical, legal and social implications of human gene editing. Their …
Policy Issues
In June 2013, the Supreme Court determined that DNA in its natural form cannot be patented.
… to the Code, a patent may only be granted on "any new and useful process, machine, manufacture, or composition of … Human Genome Research Institute (NHGRI) to research "legal issues regarding patents" as part of the then center's research into the ethical, social, and legal implications of human genome …
The Genomics Landscape
In the April 2024 issue of The Genomics Landscape, NHGRI Director Eric Green details how the Office of Genomic Data Science (OGDS) is becoming the epicenter for genomic data science at the institute, with numerous collaborations, projects and activities.
… April is upon us, bringing warmer weather and one of the highlights of the year, National DNA Day . On … April 25, NHGRI will host a range of exciting activities and events, including the annual Louise M. Slaughter National … input about computational genomics and data science issues. Recently, members of the working group published a …
News Release
NHGRI researchers and colleagues are calling for health disparities research that focuses on the microbiome.
… at NIH's National Human Genome Research Institute (NHGRI) and their colleagues* are calling for health disparities … health outcomes that impact certain groups of people - and the microbiome - the microorganisms that live in and on us -- are both influenced by people's environments and social interactions. As a result, the microbiome and health …
Policy Issues
Genetic information is used by law enforcement to investigate criminal acts and exonerate those who have been convicted of crimes they did not commit.
… Technological advances have made genetic and genomic tools faster, cheaper and more compatible with … used by law enforcement to investigate criminal acts. The legal system also uses genetic information to exonerate those … been convicted of crimes they did not commit. … Policy Issues …
Policy Issues
Participating in genomics research is an opportunity to support exploration of the genome and help scientists understand, prevent, detect and treat disease.
… to support scientific exploration of the genome and to help NIH in its mission to understand, prevent, detect … information about their research participants in legal proceedings, such as in the case of a subpoena. There … Studies For You? FAQs about Clinical Studies Legal, Ethical, and Safety Issues … Frequently Asked Questions … Get …
Policy Issues
Synthetic biology is a field of science that involves redesigning organisms for useful purposes by engineering them to have new abilities.
… them to have new abilities. Synthetic biology researchers and companies around the world are harnessing the power of … for malicious purposes. Please see the " What are the ethical and social implications ?" section of this resource to learn …
The Genomics Landscape
In the December 2024 issue of The Genomics Landscape, NHGRI Director Eric Green highlights the keynote speaker at the institute's annual symposium, Kate Rubins, a biologist and NASA astronaut who was the first person to sequence DNA in space.
… I had a wonderful time catching up with so many genetics and genomics colleagues at the American Society of Human … I stopped in at a few meetings of research consortia and spent multiple hours greeting genomics and genetics … and Capacity Building Efforts Related to Bioethical Issues   Building Sustainable Software tools for Open Science …
Event
The National Human Genome Research Institute and its partners are organizing a social media campaign from June 7-11, 2021, that focuses on healthcare provider genomics education.
… available. The National Human Genome Research Institute and its partners are organizing a social media campaign from June 6-10, 2022, that focuses on … will include panel discussions, webinars, Twitter chats and Q&As. Follow on Twitter:  #MedGeneEd22 … 2022 Healthcare …
Event
The National Human Genome Research Institute and its partners are organizing a social media campaign from June 7-11, 2021, that focuses on healthcare provider genomics education.
… of Pharmacy (AAFP) American College of Medical Genetics and Genomics (ACMG) American Board of Medical Genetics and Genomics (ABMGG) and University of Colorado American … Research Institute and its partners are organizing a social media campaign from June 7-11, 2021, that focuses on …