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Policy Issues
Scientific institutions are developing recommendations to support the responsible use of human gene-editing research.
… different groups including patients, community leaders and policy makers. NHGRI uses the term "genome editing" to … the responsible use of human gene-editing research. … Policy Issues …
Policy Issues
The GINA is an important U.S. civil rights law that protects individuals from discrimination based on their genetic information.
… from discrimination based on their genetic information. … Policy Issues …
Policy Issues
NHGRI has created the IDE Greenhouse as an educational resource to help increase understanding of the regulation in the genomics context.
… understanding of the regulation in the genomics context. … Policy Issues …
Policies and Guidance
​A site map listing all pages on genome.gov, the official website of the National Human Genome Research Institute.
Policy Issues
Genome editing is currently being applied to research on cancer, mental health, rare diseases, and many other disease areas.
… health, rare diseases, and many other disease areas. … Policy Issues …
Policy Issues
Scientists have edited genomes for many years, but CRISPR technology has improved the speed, cost, accuracy, and efficiency of genome editing
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… cost, accuracy, and efficiency of genome editing ​ … Policy Issues …
Policy Issues
Genome editing is a method that lets scientists change the DNA of many organisms, including plants, bacteria, and animals.
… many organisms, including plants, bacteria, and animals. … Policy Issues …
Policies and Guidance
Frequently Asked Questions regarding the Update to NIH Management of Genomic Summary Results Access.
… GSR and how? … What are the options under the NIH GDS Policy for sharing GSR? … Can approved data users share GSR …
About NHGRI
The Genomics and Society Working Group advises on planning and priorities for genomics and society activities at NHGRI.
… in light of changes in genomics, genomic medicine, and the policy landscape, aiming to identify emerging issues or gaps. … among the different Genomics and Society research and policy components of NHGRI (noting that formal oversight of … at the institute. ​ … Ethics Issues In Genomics, Policy Issues In Genomics, Legal Issues In Genomics, Genomics …
Policy Issues
El uso de seres humanos en las investigaciones biomédicas, clÃnicas y socioconductuales puede ofrecer entendimiento y descubrimientos que no pudieran obtenerse de ninguna otra manera.
… Todas las investigaciones financiadas por el gobierno federal en que se estudien seres humanos, tales como las … por o realizada en el NIH, está sujeta a la PolÃtica Federal para la Protección de Seres Humanos en Investigaciones ( Federal Policy for the Protection of Human Research Subjects ) o …