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The Genomics Landscape
In the December 3, 2020 edition of The Genomics Landscape, Dr. Eric Green spotlights on ELSIhub.
… opportunities, solicit expert commentary, obtain advice on policy or legislation, and arrange mentor/mentee … sharing in biomedical research, NIH released the Final NIH Policy for Data Management and Sharing in October 2020. The policy applies to all NIH-funded research and will go into …
Policy Issues
Scientific institutions are developing recommendations to support the responsible use of human gene-editing research.
… different groups including patients, community leaders and policy makers. NHGRI uses the term "genome editing" to … the responsible use of human gene-editing research. … Policy Issues …
Policy Issues
The GINA is an important U.S. civil rights law that protects individuals from discrimination based on their genetic information.
… from discrimination based on their genetic information. … Policy Issues …
Policy Issues
NHGRI has created the IDE Greenhouse as an educational resource to help increase understanding of the regulation in the genomics context.
… understanding of the regulation in the genomics context. … Policy Issues …
Policies and Guidance
​A site map listing all pages on genome.gov, the official website of the National Human Genome Research Institute.
Policy Issues
Genome editing is currently being applied to research on cancer, mental health, rare diseases, and many other disease areas.
… health, rare diseases, and many other disease areas. … Policy Issues …
Policy Issues
Scientists have edited genomes for many years, but CRISPR technology has improved the speed, cost, accuracy, and efficiency of genome editing
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… cost, accuracy, and efficiency of genome editing ​ … Policy Issues …
Policy Issues
Genome editing is a method that lets scientists change the DNA of many organisms, including plants, bacteria, and animals.
… many organisms, including plants, bacteria, and animals. … Policy Issues …
Policies and Guidance
NIH established the Diversity Supplements program to improve the diversity of the research workforce by recruiting and supporting students, post-doctorates, and eligible investigators from diverse backgrounds, including those from groups that have been shown to be underrepresented in health-related research.
Policies and Guidance
Frequently Asked Questions regarding the Update to NIH Management of Genomic Summary Results Access.
… GSR and how? … What are the options under the NIH GDS Policy for sharing GSR? … Can approved data users share GSR …