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Staff
Dr. Edward Giniger is an adjunct investigator in NHGRI's Genetics and Molecular Biology Branch.
News Release
A new educational resource funded by the National Human Genome Research Institute (NHGRI) is now available to improve genomic literacy among physicians.
… Kiara Palmer … A new educational resource funded by the National Human Genome Research … in Genomics (ISCC) , which developed the toolkit. "This resource demonstrates the benefits of the ISCC collaborative … resources in genomic education and clinical care. This new resource builds on a curriculum originally created by the …
News Release
NIH researchers have created a data resource show how differences in an individual's genome can affect gene activity and contribute to disease.
… project have created a new and much-anticipated data resource to help establish how differences in an individual's … affect gene activity and contribute to disease. The new resource will enable scientists to examine the underlying … NIH launched the GTEx Project in 2010 to create a data resource and tissue bank for scientists to study how genomic …
Engage
News, events and media resources related to the research and programs supported by the National Human Genome Research Institute.
eMERGE
Important information about RFAs, upcoming dates, frequently asked questions and helpful links.
… 1 and continue into Year 4 Is the plan to have a central consent form which will be used by all clinical sites? Yes, there will be a central consent form that might need slight modification based on … to identify and implement methods to leverage this resource to reduce barriers for implementing genomic …
Staff
Dr. Erin M. Ramos is a program director in the Division of Genomic Medicine at the National Human Genome Research Institute.
… Dr. Ramos is a Project Scientist for Clinical Genome Resource (ClinGen), a consortium of nearly 2,000 clinicians … Genome Resource Education Working Group. Development of a consent resource for genomic data sharing in the clinical … Beskow LM, Dressler L, Lemke AA, Ramos EM, Rodriguez LL; Consent and Community Consultation Working Group of the …
Event
NHGRI's ELSI Research Program hosted two webinars on the needs and resources to increase the reach, impact and transparency of ELSI research.
Your Genome
Information about the relationship between genomics and health for patients, families and health professionals.
Staff
Julia Fekecs is a visual information specialist in NHGRI’s Office of Communications.
Policy Issues
In 2008, the Genetic Information Nondiscrimination Act was passed into law, prohibiting discrimination by employers and health insurers.
… Review Boards, and integrating information on GINA into informed consent forms. To comply with GINA, informed consent forms … be maintained. NHGRI has developed an informed consent resource  for participants in genomics research. … Some …