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News Release
John Ohab, Ph.D., a neuroscientist and science communicator, has been named chief NHGRI's Communications and Public Liaison Branch.
… and science communicator, has been named chief of the Communications and Public Liaison Branch (CPLB) at the National Human Genome Research Institute (NHGRI), part of the National Institutes of Health (NIH). In this role, he … goals and policies. … CPLB is part of the Division of Policy, Communications, and Education (DPCE), whose mission …
Policies and Guidance
NHGRI is committed to maintaining a work environment that is courteous, respectful, and free from harassing behaviors for its employees, contractors, volunteers, interns and visitors.Â
… on (301) 402-4845 File an EEO complaint through the Office of Equity, Diversity, and Inclusion at … or fellow. … NHGRI Anti-Harassment Plan NIH Climate Survey Results - November 2019 General Facts of the Survey for NHGRI … Workforce Diversity October 23, 2019 NIH Anti-Harassment Policy and Videos Anti-Harassment Q&A … Too Many Seniors …
Policy Issues
Genetic information is used by law enforcement to investigate criminal acts and exonerate those who have been convicted of crimes they did not commit.
… information to exonerate those who have been convicted of crimes they did not commit. This page provides information … sample can then be taken from the suspect. The results of a comparison between that sample and the crime …  or the practice of IGG. The Department of Justice Interim Policy on investigative genetic genealogy went into effect in …
The Genomics Landscape
In the December 3, 2020 edition of The Genomics Landscape, Dr. Eric Green spotlights on ELSIhub.
… by next Thanksgiving. I was remiss in making you aware of an important National Institutes of Health (NIH) milestone … opportunities, solicit expert commentary, obtain advice on policy or legislation, and arrange mentor/mentee … research process that can improve reproducibility of study results and promote reuse of high-value datasets for future …
Policy Issues
Payers such as insurance companies and Medicare need systematic ways of evaluating genetic tests for reimbursement.
… For patients to have full access to the benefits of genetic testing, payers such as insurance companies and … of genetic testing. There are several reports created by policy and scientific experts seeking to advise Federal … testing may be concerned about the privacy of their results and whether insurance companies could use a genetic …
Policy Issues
Informed consent shows respect for personal autonomy and is an important ethical requirement in research.
… It is essential to respect the rights and interests of research participants, given that their contributions, … For instance, the NIH Genomic Data Sharing (GDS) policy expects that researchers obtain consent when they plan … shared. Whether participants will receive any individual results from current or future studies using their samples or …
Policy Issues
In 2008, the Genetic Information Nondiscrimination Act was passed into law, prohibiting discrimination by employers and health insurers.
… to participate in the research needed for the development of new tests, therapies, and cures. This page provides an … upon employment by the military, and so genetic test results may affect one’s ability to access TRICARE … discrimination by employers and health insurers. … Policy Issues …
Policy Issues
Most genetic tests today are not regulated, meaning that they go to market without any independent analysis to verify the claims of the seller.
… As the field of genomics advances, genetic and genomic tests are becoming more common in, and out of, the clinic. Yet most genetic tests today are not … in 2010 the FDA announced plans to move away from a policy of "enforcement discretion" (see next section, "FDA …
Policy Issues
NHGRI wants to ensure that all populations benefit from the advances of genomics research.
… Genomics research is shaping the future of medicine. For these advances of this research to benefit everyone more equally and improve … as becoming research scientists, research participants and policy makers. It is important for everyone to be informed …
Policy Issues
Patients with genetic disorders and members of the public have diverse about germline genome editing.
… Patients with genetic disorders and members of the public, both in the United States and around the … disorders. … Patients, patient advocates, and families of patients with genetic disorders have diverse views on … it does have restrictions through legislation and NIH policy. The Appropriations Act of 2016, passed in December …