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About Genomics
NHGRI considers the ethical, legal and social aspect of genomics research in our work, including these key policy issues
… is committed to driving the responsible use of genomics in society in order to advance knowledge and ensure that … the health of all humans. To do this, we consider the ethical, legal, and social aspect of genomics research in our work, including these key issues. … Related Content … Policy Issues in Genomics … NHGRI …
Policy Issues
Most ethical discussions about genome editing center on human germline editing because changes are passed down to future generations.
… Most of the ethical discussions related to genome editing center around human germline because editing changes made in the germline would be passed down to future generations. … … the approaches, objectives and global society. Brief Funct Genomics, 16(1), 46-56. doi:10.1093/bfgp/elv053 [8] Park, A. … changes are passed down to future generations. … Policy Issues …
News Release
Four NIH grants will support research on the ethical, legal and social questions raised by genomics research advances and genomic information.
… National Institutes of Health will support research on the ethical, legal and social questions raised by advances in genomics research and the increasing availability of … different languages and forms centers where they can study issues across disciplines. These grants are diverse and …
News Release
The Genomics and Society: Expanding the ELSI Universe conference focused on issues arising from the ethical, legal and social implications of genomic research.
… of breast cancer, genomics is rapidly becoming a fixture in our lives. Genomics and Society: Expanding the ELSI … Universe, a three-day conference on the vast number of issues that spring from the ethical, legal and social implications of genomic research, …
Research Funding
Applications demonstrating excellent grantsmanship, grant mechanisms and research methodologies common to ethical, legal and social implications research.
… independent NIH research support during this transition in order to help awardees to launch competitive, independent … Policy Anya Prince 2015 Summary Statement Full Application Ethical, Legal, and Social Implications of Translational … of Germline Gene Editing: Ethical, Legal, and Social Issues Bryan Cwik 2018 Summary Statement Full Application …
Research Funding
The three research domains to be considered for support by the NHGRI Ethical, Legal and Social Implications Research Program.
… Research Design and Implementation Diversity and Inclusion in Genomic Research Community Engaged and Community Driven … Genomic Healthcare This research identifies and addresses ethical, legal, social and policy issues that arise for individuals, communities and care …
Research Funding
The NHGRI Ethical, Legal and Social Implications (ELSI) Research Program Abstracts and Activities Database organizes abstracts for all ELSI-related activities
… The Ethical, Legal and Social Implications (ELSI) Research … projects that conduct research and education on ELSI issues. ELSI also supports other program activities such as … for all ELSI-related activities. ​ … Ethical Issues In Genomics, Legal Issues In Genomics, Social Issues In …
Administrative
The Ethics Branch provides leadership, guidance and advice to NHGRI employees regarding ethical standards of conduct.
… assists NHGRI employees to adhere to the Standards of Ethical Conduct for Employees of the Executive Branch and the Supplemental Standards of Ethical Conduct for Employees of the Department of Health and … ethical conduct of research. Such activities are conducted in accordance with stringent standards and transparent …
News Release
NIH will hold a Reddit "Ask Me Anything" with members of its NHGRI Ethical, Legal and Social Implications Research Program.
… of the National Human Genome Research Institute's (NHGRI) Ethical, Legal and Social Implications Research Program, a part of the Division of Genomics and Society. … Impact on Society Members of the … Research Program, is designed to bring together experts in wide-ranging fields - bioethics, law, behavioral and …
News Release
NIH issues a final Genomic Data Sharing policy to speed the translation of data into knowledge, improve health and protect patient privacy.
… of research participants. The final policy was posted in the Federal Register Aug. 26, 2014 and published in the … oversight of the GDS policy, including policy needs and issues related to data submission and access. The committees will also monitor scientific and ethical or legal developments that might warrant further …