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- Ethical, Legal and Social Implications (ELSI) Research Program7
- Genomics-Enabled Learning Health Systems (gLHS)2
- Genome Technology Program4
- Human Genome Reference Program (HGRP)2
- Impact of Genomic Variation on Function (IGVF) Consortium3
- Encyclopedia of DNA Elements (ENCODE) Project1
- Molecular Phenotypes of Null Alleles in Cells (MorPhiC)1
- Genomic Innovator Awards2
- NHGRI Genomic Data Science Analysis, Visualization and Informatics Lab-space (AnVIL)3
- Genomics Research to Elucidate the Genetics of Rare Diseases (GREGOR) Consortium2
- Developmental Genotype-Tissue Expression (dGTEx)1
- Multi-Omics for Health and Disease (Multi-Omics)1
Policies and Guidance
NHGRI does not collect personally identifiable information about you on genome.gov unless you volunteer to provide it.
… Thank you for visiting genome.gov and reviewing our privacy policy. The U.S. Department of Health and Human Services, of … questionnaire, customer satisfaction survey, epidemiology research study, etc., we will maintain the information you …
Policy Issues
There are laws and policies that serve to protect the privacy of individuals' genomic information.
… An individual’s privacy should be respected when their genomic information is used for research, clinical applications or other uses. This page … of the research participants (see Genomic Data Sharing Policy  below). In addition, NIH issues Certificates of …
News Release
NIH submits new policy that requires all NIH-funded investigators who conduct sensitive, health-related research be issued Certificates of Confidentiality.
… Cures Act, enacted December 13, 2016, was to strengthen privacy protections law for research participants. The new law specifically requires … the National Institutes of Health (NIH) put forth a new policy which requires that all NIH-funded investigators who …
News Release
NIH issues a final Genomic Data Sharing policy to speed the translation of data into knowledge, improve health and protect patient privacy.
… Health has issued a final NIH Genomic Data Sharing (GDS) policy to promote data sharing as a way to speed the … and procedures that improve health while protecting the privacy of research participants. The final policy was posted in the …
Policies and Guidance
The NHGRI funding policy is aimed at accelerating scientific and medical breakthroughs that improve human health.
… resources; methods and technologies that will accelerate research in understanding the structure of genomes; … the effectiveness of healthcare. NHGRI also supports research in the ethical, legal and societal implications of … training and career development. … 2023 Final Funding Policy for NHGRI 2022 Final Funding Policy for NHGRI 2021 …
About NHGRI
A list of policies and guidance related to funding, genomic data sharing, website operations and our work environment at the National Human Genome Research Institute.
… and our work environment at the National Human Genome Research Institute (NHGRI). … NHGRI Policies and Guidance … A … Genome Research Institute. ​ … Website Accessibility, NIH Policy, Genomic Data Sharing, NHGRI Policy, NIH Website Policy, Copyright, Privacy Policy … A list of policies and guidance related to …
Research Funding
Policies and guidance regarding research funding from the NHGRI and the National Institutes of Health.
… The National Institutes of Health (NIH) Grants Policy Statement is the definitive resource for grants … federal agency responsible for biomedical and behavioral research and research training. As such, it is accountable to Congress and …
News Release
The NHGRI-ASHG Genetics and Public Policy Fellowship prepares scientists for careers in science policy.
… and medical care of Americans is greatly influenced by the policy decisions that guide genomic research and its use in the clinical setting. Understanding the interplay of policy and scientific research is critical to defining good policy. … Strengthening …
NEWS RELEASE
Cristina Kapustij, M.S., was named chief of the NHGRI's Policy and Program Analysis Branch.
… … Cristina Kapustij, M.S., has been named chief of the Policy and Program Analysis Branch (PPAB) at the National Human Genome Research Institute (NHGRI). In her new role, she will oversee … will be vital as genomics continues to advance beyond the research laboratory toward clinical and other applications …
Policies and Guidance
NHGRI encourages you to share your thoughts on the topics explored on genome.gov and other websites we own or administer.
… The National Human Genome Research Institute (NHGRI) encourages you to share your … or to remove comments, that are inconsistent with our policy, at our complete discretion. The views expressed in … do not intend. Additional guidance as to how NHGRI regards privacy issues can be found at our Privacy Policy . We …