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Fact Sheet

Informed consent is more than a form; it’s a process. What does it involve?

… careful explanation about how the participant’s genomic information will be used during and after the study, as well … challenging to convey. With advances in genome sequencing technology, increased data sharing and concerns around … that must be met during this process are: providing key information. confirming the participant understands the …

Fact Sheet

Why is informed consent required?

Several regulations and policies stipulate the information that must be given to research participants prior to their enrolling in a study.

… Additionally, HIPPA and the Common Rule permit research on information from deceased individuals who did not provide … must authorize disclosure of individual health information, including individual research results. It is … a specific circumstance, researchers should consider what information is important to convey to ensure respect for …

Health

Genomics and Medicine

Genomic medicine involves using genomic information as part of clinical care and the health outcomes and policy implications of that clinical use.

… an emerging medical discipline that involves using genomic information about an individual as part of their clinical … to conduct and then analyze, and because disseminating information and educating healthcare workers about a new … Testing, Newborn Screening, Privacy In Genomics, Genomic Technology … Genomic medicine involves using genomic …

15 Ways Genomics Influences Our World

Direct-to-Consumer Genomic Testing

Advances in genomics are helping you access information about your genome from your home.

… Advances in genomics are helping you access information about your genome from your home. … Did you know … read specific places in their DNA and provide them with information about their genome? Advances in genomics since … to consumer" genomic testing. You can even seek genomic information without involving a healthcare provider in …

Fact Sheets

DNA Microarray Technology Fact Sheet

A DNA microarray is a tool used to determine whether the DNA from a particular individual contains a mutation in genes.

… for? … How does a DNA microarray work? … DNA Microarray Technology Fact Sheet … A DNA microarray is a tool used to …

Fact Sheet

Human Genome Project Fact Sheet

A fact sheet detailing how the project began and how it shaped the future of research and technology.

… project’s architects and participants hoped the resulting information would usher in a new era for biomedical research, … the project. In part due to a deliberate focus on technology development, the Human Genome Project ultimately … issues related to the acquisition and use of genomic information. They were especially aware of the potential …

News and Events

Press Resources

A collection of institute resources, background information, and points of contact for members of the press.

… … A collection of institute resources, background information, and points of contact for members of the press. … A collection of institute resources, background information, and points of contact for members of the press. …

For Patients and Families

Genetic Counseling FAQ

Genetic professionals provide information and support to individuals or families who have genetic disorders or may be at risk for inherited conditions.

… work as members of health care teams providing information and support to individuals or families who have … work as members of health care teams providing information and support to individuals or families who have … decisions surrounding genetic testing. Provide support and information to help a person make a decision about testing. …

Fact Sheet

Pharmacogenomics

Pharmacogenomics is a growing area of genomic medicine that uses a patient's genomic information to help healthcare providers select the medications and dosages that are predicted to work best in each patient.

… proteins, which are encoded by genes. Genes contain the information needed for proteins to be made, activated, and … medication for a patient. Rather, it uses genomic information about a patient to identify which medications … For healthcare providers who are interested in additional information and resources, please visit our Healthcare …

Fact Sheets

Comparative Genomics Fact Sheet

Comparative genomics is a field of biological research in which researchers compare the complete genome sequences of different species.

… of living things have changed over time. As DNA sequencing technology becomes more powerful and less expensive, … Genomics, Genome Sequences, DNA Sequence, DNA Sequencing Technology … Comparative genomics is a field of biological …