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- Developmental Genotype-Tissue Expression (dGTEx)1
- Multi-Omics for Health and Disease (Multi-Omics)1
- Ethical, Legal and Social Implications (ELSI) Research Program7
- Genomics-Enabled Learning Health Systems (gLHS)2
- Genome Technology Program4
- Enhancing Opportunities in Computational Genomics and Data Science1
- Human Genome Reference Program (HGRP)2
- Impact of Genomic Variation on Function (IGVF) Consortium3
- Advancing Genomic Medicine Research (AGMR)1
- Encyclopedia of DNA Elements (ENCODE) Project1
- Molecular Phenotypes of Null Alleles in Cells (MorPhiC)1
- Clinical Genome (ClinGen) Resource1
- Genomic Innovator Awards2
- Polygenic RIsk MEthods in Diverse populations (PRIMED) Consortium1
- NHGRI Genomic Data Science Analysis, Visualization and Informatics Lab-space (AnVIL)2
- Genomics Research to Elucidate the Genetics of Rare Diseases (GREGOR) Consortium2
Profile
In an interview, Boyer reflects on her NHGRI career, the history of the NHGRI ELSI Research Program and the exciting future of research at the interface of ethics and genomics.
… From pastor to program director in the Division of Genomics and Society, Joy Boyer concludes her … at NHGRI. … Anna Rogers: How have you seen NHGRI’s ELSI Research Program change over your career?  Joy Boyer: As …
Event
On May 23, 2023, NHGRI will host a webinar: ELSI Research and the New NIH Data Management and Sharing (DMS) Policy.
… The webinar will focus on the following topics: Overview of the NIH Data Sharing Management Policy Application of the DMS Policy to ELSI Research Data sharing templates and resources Q&A from …
Event
The NHGRI Education and Community Involvement Branch is co-hosting a webinar on January 9 with the Undergraduate Genetics Education Network that will explore the changing landscape of genetics from a largely descriptive field and emerging creative fields.
… Reimagined: Preparing Students to Explore the Forefront of Research and Design." This live, highly participatory workshop will explore the changing landscape of genetics from a largely descriptive field (how does it …
Event
NHGRI's ELSI Research Program hosted two webinars on the needs and resources to increase the reach, impact and transparency of ELSI research.
… Following the 2017 ELSI Congress and entering a new phase of strategic planning for the National Human Genome Research Institute (NHGRI), the Ethical, Legal and Social … resources to increase the reach, impact and transparency of ELSI research. The webinars included a brief introduction …
Event
On March 15, 2021, NHGRI’s Policy and Program Analysis Branch hosted a panel discussion exploring a constant tension at multiple levels in genomics research and medicine, from patient-provider interactions to research engagement with marginalized communities.
… Moderator … A constant tension that spans all areas of biomedical research and clinical practice is the question of how experts can act in the best interest of patients and …
Event
The Ethical Legal and Social Implications (ELSI) Research Program is hosting a webinar to gather specific feedback on four potential goals for the field of ELSI research over the next decade.
… Additional Resources … At the time of this webinar, the National Human Genome Research Institute (NHGRI) was undergoing a Strategic Planning process with the goal of publishing the final Strategic Plan in the fall of 2020. …
Event
The Ethical Legal and Social Implications (ELSI) Research Program is hosting a webinar to gather specific feedback on four potential goals for the field of ELSI research over the next decade.
… Additional Resources … At the time of this webinar, the National Human Genome Research Institute (NHGRI) was undergoing a Strategic Planning process with the goal of publishing the final Strategic Plan in the fall of 2020. …
Event
The NHGRI Ethical, Legal and Social Implications (ELSI) Research Program will host the Pre-Application Webinar for the Building Partnerships and Broadening Perspectives to Advance ELSI Research (BBAER) Program - New Limited Competition for Resource Limited Institutions on August 28, 2024.
… to Advance Ethical, Legal, and Social Implications (ELSI) Research (BBAER) Program (UM1), Clinical Trial Optional … Research (BBAER) Program ( RFA-HG-24-026 ). The purpose of the BBAER Program was to broaden the types of knowledge, skills, expertise, experience, and perspectives …
Event
On December 11, 2023, NHGRI, in collaboration with several other NIH Institutes and Offices, recently renewed the three Notices of Funding Opportunity (NOFOs) used to support investigator-initiated research on the ethical, legal and social implications (ELSI) of human genome research.
… may have about the NOFOs to Zo.Bly@nih.gov . A recording of the webinar and a list of questions and answers have been made available. … Questions … The National Human Genome Research Institute, in collaboration with several other NIH …
Event
NHGRI currently sponsors a biennial meeting to bring together those with an interest in the ELSI of genomic research, known as the ELSI Congress.
… NHGRI’s Ethical, Legal and Social Implications (ELSI) Research Program has supported a large body of empirical, analytical and conceptual research to … and address the ethical, legal, and social implications of genomics. ELSI research addresses the new and sometimes …