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News Release
NHGRI researchers have released new educational materials to help the sickle cell disease community learn about gene therapies for the disease.
… New educational materials to help the sickle cell disease community learn about gene therapies for the disease are now … options. “These materials offer the sickle cell disease community information about what participating in a gene … community understand these new therapies and to facilitate engagement between this community and those conducting …
15 Ways Genomics Influences Our World
Genomics is advancing the study of individual and communities of microbes.
News Release
American Indians and Alaska Natives IRB training programs at NIH ensure the welfare of people participating in federally regulated research.
… focused on protecting the individual, but there were no community protections. We made sure that, on behalf of the tribes, the revisions addressed community protections, community needs and community benefits. We did this through …
Staff
Christina R. Daulton serves as the Partnerships and Engagement Officer at the National Human Genome Research Institute (NHGRI) in the Office of the Deputy Director and the Training, Diversity, and Health Equity Office.
… Christina R. Daulton serves as the Partnerships and Engagement Officer at the National Human Genome Research … an Education Outreach Specialist in NHGRI’s Education and Community Involvement Branch, where she played a significant … genomics education, genomics resources for teachers, community outreach … Christina R. Daulton serves as the …
Educational Resources
NHGRI educates students, teachers and the public about genomics through outreach events and hands-on activities.
… in outreach events and hands-on activities. … ​Community Outreach … The National Human Genome Research …
Staff
Dr. Belen Hurle is an associate investigator in NHGRI's Division of Intramural Research, an educational outreach specialist in the Education and Community Involvement Branch and a training program coordinator in the Intramural Training Office.
… Belen Hurle, Ph.D., develops models of public engagement related to genomics, genetics and public health. … an educational outreach specialist in the Education and Community Involvement Branch and a training program … … Belen Hurle, genomics education, careers in genomics, community outreach … Dr. Belen Hurle is an associate …
Leadership Initiatives
The Genomics and Health Disparities Interest Group provides a forum to connect individuals from different scientific disciplines across the National Institutes of Health (NIH) and researchers in the Washington D.C. metropolitan area engaged in genomics and health disparities research, as well as provide opportunities for professional development, networking and community engagement.Â
… opportunities for professional development, networking and community engagement. … As the pace of genomic research accelerates , … opportunities for professional development, networking and community engagement. In addition to establishing a listserv …
Event
On March 13-14, 2017, the National Human Genome Research Institute (NHGRI) in partnership with the Foundation for the National Institutes of Health (FNIH) hosted a strategic visioning meeting for a proposed GLEE Initiative.
… Genetics Philip Alderson NIH/NLM Maria Alvarez El Paso Community College Zeke Alvarez-Saavedra miniPCR Kathy Arnos … Academy Alyssa Brooks NIH/NINR Lesley Brown Baltimore City Community College Jen Carroll Illumina June Carroll Mt. Sinai … Pike … Building 45 … Genomic Literacy Education and Engagement Strategic Visioning Meeting … On March 13-14, …
Event
On March 15, 2021, NHGRI’s Policy and Program Analysis Branch hosted a panel discussion exploring a constant tension at multiple levels in genomics research and medicine, from patient-provider interactions to research engagement with marginalized communities.
… medicine, from patient-provider interactions to research engagement with marginalized communities.   … Online … … medicine, from patient-provider interactions to research engagement with marginalized communities. … On March 15, … medicine, from patient-provider interactions to research engagement with marginalized communities. … Event …
Event
The Ethical Legal and Social Implications (ELSI) Research Program is hosting a webinar to gather specific feedback on four potential goals for the field of ELSI research over the next decade.
… Over the previous year, the NHGRI held numerous related engagement events  including town halls, meetings and … Plan. The internal working group that focused on ELSI, engagement and education issues in the Strategic Plan hosted …