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Health
Genomic medicine involves using genomic information as part of clinical care and the health outcomes and policy implications of that clinical use.
… Genomic medicine is an emerging medical discipline that involves using genomic information about an individual as part of their … therapeutic decision-making) and the health outcomes and policy implications of that clinical use. Already, genomic …
Policies and Guidance
For FY22, NHGRI’s extramural program will be operating under the NHGRI 2020 Strategic Vision.
… of disease; the implementation and effectiveness of genomic medicine, genomic data science and bioinformatics; training, … To facilitate the implementation of this NIH-wide policy, NHGRI is very flexible in the support of early stage …
Policies and Guidance
For FY2023, NHGRI’s extramural program will be operating under the NHGRI 2020 Strategic Vision.
… of disease; the implementation and effectiveness of genomic medicine, computational genomics and data science; … and ethical, legal, and social issues related to genomic advances. … The NHGRI Extramural Research Program is … of Award issued in FY2022 as described in the FY23 Fiscal Policy . Small Business Innovation Research (SBIR) and Small …
Staff
Cristina Kapustij was the chief of the Policy and Program Analysis Branch at the National Human Genome Research Institute until June 2024.
… Cristina Kapustij, M.S., is chief of the Policy and Program Analysis Branch at the National Human … policy positions on issues arising from the translation of genomic research discoveries to uses within the public … Research Institute until June 2024. … Elena Ghanaim, NIH Genomic Data Sharing (GDS) Policy, Informed Consent, health …
Staff
Elena Ghanaim is the Policy Advisor for Data Science and Sharing within the Office of Genomic Data Science (OGDS) at the National Human Genome Research Institute (NHGRI)
… Elena Ghanaim is the Policy Advisor for Data Science and Sharing within the Office of Genomic Data Science (OGDS) at the National Human Genome … For the last three years, she has advised the NHGRI Genomic Data Science Analysis, Visualization and Informatics …
Policies and Guidance
This page provides an overview of Resource Sharing Plans, a required document in most NIH funding applications. Most applicants for NIH funding must provide a Resource Sharing Plan (RSP) documenting plans for sharing resources that result from their federally funded work. NIH Policies that govern the sharing of resources include the NIH Model Organism Sharing Policy and the NIH Research Tools Policy.
… Please review the NIH webpage on the Research Tools Policy for the NIH definition of “research tools,” principles … research, spanning the various research areas (e.g., genomic science, genomic medicine, ELSI research), produces research tools …
Policies and Guidance
NHGRI links to external websites to supplement the information found on our website.
… organizations. You are subject to external site's privacy policy when you leave our site. We proudly comply with 508 … … External Link Disclaimer, Non-federal Websites, Website Policy, Federal Policy, NIH Website Policy … NHGRI links to external websites …
Organizational Structure
NHGRI’s Office of Genomic Data Science (OGDS) provides leadership, strategic guidance and coordination for NHGRI activities, programs and policies in genomic data science.
… Garg, Nicola Mulder, and Shurjo Sen. … The Office of Genomic Data Science (OGDS) was established in 2021 to: Develop, promote, support and coordinate genomic data science activities across all parts of NHGRI. … career researchers September 7, 2023 NIH data management policy commits to making research results available | The …
Events
Data sharing has been a central tenet of the field of genomics since the Human Genome Project.
… Human Genome Project. While many recognize that sharing genomic data is critical to scientific progress, considerable … privacy and other concerns have been raised over sharing genomic data too broadly and openly. It is immensely … to balance these benefits and risks while crafting genomic data sharing policies. In this session, the four …
The Genomics Landscape
In the December 3, 2020 edition of The Genomics Landscape, Dr. Eric Green spotlights on ELSIhub.
… out that we have added a new temporary section to The Genomic Landscape , one that highlights the “Guiding … opportunities, solicit expert commentary, obtain advice on policy or legislation, and arrange mentor/mentee … on January 25, 2023. NHGRI has a long history of sharing genomic data and strongly supports NIH’s in these increased …