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Policies and Guidance
NHGRI encourages you to share your thoughts on the topics explored on genome.gov and other websites we own or administer.
… the following are prohibited: Vulgar, profane, or abusive language; personal attacks of any kind; inappropriate …
News Release
NIH programs are establishing which genes and genomic variants play a role in human disease, enabling use in medicine and research.
… who choose to receive this information. A common language To help establish a common language for genomic databases to "speak" to each other, …
Event
The Advances in Genomic Technology Development meeting and Genome Technology Forum were hosted by the National Human Genome Research Institute (NHGRI) Technology Development Coordinating Center (TDCC) at The Jackson Laboratory in Farmington, CT from June 10-13, 2024.
Professional Development Programs
The JHU/NIH Genetic Counseling Training Program addresses the growing need for genetic counseling services.
… from countries where English is not the primary, official language to submit scores on an English Language Proficiency Test .  The NIH/JHU GCTP does NOT …
Secondary Genomics Findings Service
Frequently Asked Questions and Resources
… to do so that we can provide guidance on proper consent language.   What if my project is for exome/genome sequencing …
Funding Opportunities
The Computational Genomics and Data Science Program Announcements (PARs) invite applications for investigator-initiated research efforts fostering innovation in computational genomics, data science, statistics, bioinformatics, and data visualization and exploration.
News Release
Researchers at the National Institutes of Health (NIH) question advertisements by direct-to-consumer genetic ancestry kits that claim to know what it really means to be American Indian.
… test would help customers discover who they were, using language such as “Reinvent the way you see yourself” and … standards on their own ensuring that they use consistent language to help the public understand how to interpret …
Event
We invite scholars to submit ideas to be one of six to seven speakers at our symposium, “Irreducible Subjects: Disability and Genomics in the Past, Present, and Future”, with an additional opportunity to join a collected set of papers on the same theme.
… body of past generations of eugenicists. Even the language traditionally used for genomic variations – … Genetics, genomics, disability, and stigmatizing language in science communications  The “medical model”, …
Policy Issues
This glossary contains definitions for commonly used terms (such as "bill", "statute", "regulation" and more) found in the Genome Statue and Legislative Database.
… subsequent amendments (additions to or deletions from the language of the original law or regulation), to provide the … the original law with subsequent amendments and deletes language that has been repealed or superseded, so as to …
Policies and Guidance
Frequently Asked Questions regarding the GDS Policy expectations for NHGRI-funded genomic research.
… and to be shared broadly. NHGRI specifies that consent language should avoid restrictions on the types of users who … Consent Form ’ webpage contains considerations and sample language that addresses the practical limits on the ability …