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News Release
NHGRI researchers asked patients, parents and physicians in the sickle cell disease community (SCD) what they wanted and needed to know about genome editing to make informed decisions about participating in genome-editing clinical trials.
… work with patients, families and the scientific community to improve the informed consent process. … As … parents and physicians in the sickle cell disease community what they wanted and needed to know about genome … The NHGRI study suggests that the sickle cell disease community is optimistic about the promises of somatic genome …
Event
On March 1, 2018, over 65 basic research, clinical, and bioinformatic scientists in the genomics community convened for a four-hour web meeting on NHGRI-funded components of the Genome Reference Consortium (GRC).
… clinical, and bioinformatic scientists in the genomics community convened for a four-hour web meeting on … (GRC). The GRC is an essential resource for the biomedical community and due to recent technological advances, NHGRI … the reference relevant and useful clinical and research community needs (including education) related resources …
Strategic Vision
Staff within the institute and colleagues in the genomics community organized and contributed to the >50 events associated with the strategic planning process (e.g., town halls, dedicated workshops, conference sessions, and webinars) and provided critical feedback.
… Staff within the institute and colleagues in the genomics community organized and contributed to the >50 events … … Genomic Medicine Working Group (standing WG of NACHGR) … Community Engagement in Genomics Working Group (standing WG … Staff within the institute and colleagues in the genomics community organized and contributed to the > 50 events …
Event
To bring together communities of researchers working in machine learning (ML), NHGRI hosted the Machine Learning in Genomics: Tools, Resources, Clinical Applications and Ethics workshop on April 13-14, 2021.
Staff
Rosann Wise is a program analyst in the Education and Community Involvement Branch at the National Human Genome Research Institute.
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… Genome Research Institute (NHGRI) in the Education and Community Involvement Branch (ECIB). In her role, Ms. Wise … Ms. Wise also directly assists with educational and community public programming and initiatives, which engage … … Rosann Wise is a program analyst in the Education and Community Involvement Branch at the National Human Genome …
Event
On March 15, 2021, NHGRI’s Policy and Program Analysis Branch hosted a panel discussion exploring a constant tension at multiple levels in genomics research and medicine, from patient-provider interactions to research engagement with marginalized communities.
About Genomics
RNA sequencing and the detection of RNA modifications have recently gained significant attention in the genomics community. New genomic methods and technologies are still needed to advance basic and clinical research into human biology and disease.
… have recently gained significant attention in the genomics community, punctuated by a new report from the National … have recently gained significant attention in the genomics community, punctuated by a new report from the National … have recently gained significant attention in the genomics community. New genomic methods and technologies are still …
Diversity Center
Meharry Medical College establishes a Diversity Center for Genome Research (DCGR) that will narrow inequitable representation gaps for underrepresented, disadvantaged minority by realizing their vision to promote African ancestry genomic research through infrastructure building and the formation of basic, clinical, and computational science research teams that are inclusive, interdisciplinary, and community-engaged.
… research teams that are inclusive, interdisciplinary and community-engaged. … Transform the organizational … and establish a social and academic network for scientific community building among basic, clinical and computational … the DCGR's success in obtaining research funding.  Community Engagement Core Co-Leads: Stephania-Miller Hughes, …
Leadership Initiatives
The Genomics and Health Disparities Interest Group provides a forum to connect individuals from different scientific disciplines across the National Institutes of Health (NIH) and researchers in the Washington D.C. metropolitan area engaged in genomics and health disparities research, as well as provide opportunities for professional development, networking and community engagement.Â
… opportunities for professional development, networking and community engagement. … As the pace of genomic research … opportunities for professional development, networking and community engagement. In addition to establishing a listserv … etc.), as well as from the external academic community. Register for news and updates on future events . … …
The Genomics Landscape
In the May 2024 issue of The Genomics Landscape, NHGRI Director Eric Green talks about the NHGRI Research Training and Career Development Annual Meeting, which provides a venue to foster support and a sense of community for NHGRI-funded trainees, equipping them with tools for success and more clarity about career possibilities.
… was a busy and exciting month for NHGRI and the genomics community. On April 25 and 26, the institute hosted multiple … event provides a venue to foster support and a sense of community for NHGRI-funded trainees, equipping them with … Professional Schools and Graduate Schools   Genomic Community Resources    Native American Research Centers for …