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National Advisory Council for Human Genome Research
The Director's Report Related documents contain links to materials supplemental to Dr. Eric Green's Director's Report presentation to the National Advisory Council for Human Genome Research in February 2019.
… Gene Ontology Consortium Website 28 5 th iDASH Genomic Privacy Challenge 29 Ethical, Legal, and Social Implications … Hazel - Who Knows What, and When?: A Survey of the Privacy Policies Proffered by U.S. Direct-to-Consumer Genetic …
FAQ
Frequently asked questions on the webinar for the Diversity Centers for Genome Research funding opportunity announcements (FOAs): (RFA-HG-22-026 and RFA-HG-22-027.
… for data access, protection of participant and patient privacy and confidentiality, and management of health …
The Genomics Landscape
In the May 2018 edition of The Genomics Landscape, NHGRI Director Eric Green highlights the Human Genome Project receiving the 2017 Prince Mahidol Award.
… 500 questions, covering topics such as genome editing, privacy protections for participants of the All of Us …
The Genomics Landscape
In the January 2020 edition of The Genomics Landscape, NHGRI Director Eric Green highlights the newly developed polygenic risk scores webpage, which provides graphical and textual information about polygenic risk scores, describes polygenic traits, introduces how polygenic risk scores can be calculated, and explains how such scores can be interpreted.
… and creating spaces for difficult conversations about privacy, racism, ethics, and identity. The second session, …
The Genomics Landscape
In 2022, The Genomics Landscape spotlighted genomic data sharing each month in a series of entries. This page contains a collection of each of those entries.
… type 2 diabetes, epigenomics, aging, cancer, data privacy, and others.  The ClinSeq Project is a genomic … data sharing, including consent, data ownership, privacy, and international regulations. By increasing …
The Genomics Landscape
In the March 3, 2022 edition of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., highlights the new fact sheets produced by the institute's Communications and Public Liaison Branch.
… DTC pharmacogenomic tests, costs, insurance coverage, data privacy, and how and when to find a geneticist or genetic …
The Genomics Landscape
In the April 7, 2022 edition of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., highlights the Telomere-to-Telomere (T2T) consortium's publishing of a collection of papers that reported the first truly complete sequence of the human genome.
… NIH, and grantee partners on data sharing and privacy policy issues. Chris Wellington will serve as a …
FAQ
Questions and answers to help applicants responding to the ML/AI Tools to Advance Genomic Translational Research (MAGen) notice of funding opportunities (NOFOs): RFA-HG-24-004 and RFA-HG-24-005.
… publicly released is a question around identifiability and privacy in the ELSI research that will be addressed during …
The Genomics Landscape
In the October 2021 issue of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., introduces us to new scientific director Charles Rotimi, Ph.D., his background and prior accomplishments.
… are embedded in the complex questions about utility, privacy, intellectual property, commercialization, and …
Research Funding
ClinGen will advance genomics in clinical care and improve our understanding of phenotypic and functional effects of genetic variants and their clinical value.
… of products greater than the sum of its parts Data Access, Privacy, and Confidentiality Alice Popejoy Manage data policy …